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Welcome to the CCFA Bookstore!

CCFA staff and volunteers review books related to IBD appropriate topics in an effort to provide patients with as many resources as possible. Here you will find the books that received our stamp of approval based on appropriateness and value of the information for patients and families listed below in date order. The books are presented in a variety of categories:

Cooking, Diet and Nutrition
Coping with Illness
Families and Children
General Information
Personal Stories 

CCFA does not directly sell any of the listed books. Check your local or online book retailer for these titles.  (Note to authors: due to the volume of books we receive it can take up to 6 months for a book to be posted.)

 


Cooking, Diet, and Nutrition 

Two Steps Forward, One Step Back: A Journey Through Life - Ulcerative Colitis and the Specific Carbohydrate Diet™
Tucker Sweeney & Carol Thompson, 2011


“Two Steps Forward, One Step Back chronicles the true story of a young man’s struggles through the darkness of ulcerative colitis and the trials and triumphs of managing his disease through the Specific Carbohydrate Diet (SCD) ™.  The book follows Tucker Sweeny who was diagnosed with ulcerative colitis at age 23.  The book includes information on his ups and downs of living with the disease and includes practical and personal accounts on his daily functioning and life on the SCD along with cooking, travel and life with IBD.

 

 

 

Beat Crohn's! Getting to Remission with Enteral Nutrition
Margaret A. Oppenheimer, 2009
 


An easy to read guide to enteral nutrition, an effective dietary treatment for Crohn's disease. Provides practical tips on implementing the diet and explains how it compares with medications. One chapter focuses on the use of enteral nutrition in children, especially those with growth delays, and another addresses its use in treating fistulas, short bowel syndrome, and other complications of Crohn's. Includes stories of kids and adults who have tried enteral nutrition. Also evaluates food-exclusion diets and supplements (probiotics, fish oil, etc.).

 

 

Crohn's & Colitis Diet Guide
A. Hillary Steinhart, M.D., MSc, FRCP(C) and Julie Cepo, BSc, BASc, RD, 2008


An informative and easy-to-understand manner, this book gives you guidelines regarding specific foods that might cause problems, as well as delicious and nutritious recipes that can be enjoyed without compromising your condition. With reliable answers to your questions about diet and IBD, you'll learn how managing your diet can hlep give you a sense of well-being when you're living with this unpredictable disease.

 

 


Healing Foods: Cooking for Celiacs, Colitis, Crohn's and IBS 
Sandra Ramacher, 2008


Based on the author's experience of using Elaine Gottshall's Specific Carbohydrate Diet® to treat ulcerative colitis. The cookbook has over 200 recipes to be used after adhering to the introductory diet outlined in Breaking the Vicious Cycle; every recipe is grain free, gluten free, sugar free, and lactose free. 

 

 

 

 

What to Eat with IBD: A Comprehensive Nutrition and Recipe Guide for Crohn's Disease and Ulcerative Colitis
Tracie Dalessandro, MS, RD, CDN., 2006

Based on the author’s own experiences using diet in conjunction with traditional medicine to control IBD. Goal is patient self-empowerment and achieving optimal health by learning about the importance of good nutrition and what foods reduce the risk of inflammation and/or can help improve the immune system. Discusses the principles of eating well with IBD, food safety, meal planning, and the importance of vitamins/minerals and dietary supplement; contains over fifty IBD-friendly recipes

 

 

 

 

Coping with Illness 

Business from Bed: The 6-Step Comeback Plan to Get Yourself Working After a Health Crisis
Joan Friedlander, 2013 


What happens to your business or career once you've experienced a health crisis? The 6-step comeback plan in Business from Bed, based on Friedlander’s personal experience redesigning her career after a Crohn’s disease diagnosis and her work coaching hundreds of business clients, provides exactly the kind of tips, tools, resources, hope, and encouragement needed during this challenging time. You’ll receive valuable advice on how to put a business/career back together in new ways that are satisfying, sustainable, and mindful of your health. 

 

 

 

Tasting Life, A Story of Courage, Strength, Humor and Love
InaLee Koonin, 2012


For 35 years Lee was eating normal meals, the last 20 she was not able to eat enough to maintain her system, it was just not being absorbed. Lee was slowly starving to death. The answer for her was to receive most of her nutrition by vein while only tasting food. She was determined to fully live, but first needed to “pay it forward” and tell those suffering as she had been know there was an answer. Lee’s story is a real tribute to the human spirit, not for just those with digestive disease, but anyone with a chronic illness. It is for those who feel that life is too tough to deal with each day. This book is a non-addictive anti-depression answer. Tasting Life is an uplifting story of courage and love with surprising humor in the face of an unbelievable chronic illness. You will gain strength by just reading her amazing story.

 

 

Know Your Rights: A Handbook for Patients with Chronic Illness
Jennifer C. Jaff, Esq., 2012


The author, an attorney and patient advocate, provides general information for patients, doctors, lawyers, family members, and employers on the ways in which various areas of law work in the context of chronic disease. Learn about health and disability insurance, Social Security disability, employment discrimination, family and medical leave, education equity, fair housing act, and more for patients with chronic disease. The appendices summarize state laws, give sample health and disability appeal letters and sample SSDI application papers. 

 

 

Coping with Prednisone* (*and Other Cortisone-Related Medicines)
Eugenia Zukerman, and Julie R. Ingelfinger, M.D., 2007


Practical guide to making treatment with high-dose steroids as effective and trouble-free as possible. It includes "everything your doctor didn't have time to tell you" about Prednisone's side effects and how to deal with them: recipes, exercises, and tips based on personal experience. Topics include: how glucocorticoids work and why they are used; side effects such as depression, weight gain, and skin changes; diet and nutrition while on prednisone; glucocorticoid treatment in the very young and the very old; withdrawal; and life after steroids.

 

 

 

Coping Successfully with Ulcerative Colitis
Peter Cartwright, 2005


Aims to give clear and concise information about UC, to explain how to reduce the effects of UC on daily life, and to describe the potential of new treatments. Gives basic information about diagnosis, medications, diet, complications, surgery, ileostomy, etc., interspersed with personal stories of living with UC, advice, and coping strategies. Also discusses children with UC, pregnancy and fertility, and probiotics and prebiotics.

 

 

 

 

Just Fine: Unmasking Concealed Chronic Illness and Pain 
Carol Sveilich, MA, 2004


Just Fine
discusses the dichotomy of looking one way while feeling quite another. This topic is explored not only with words, but with original portraits, because the true story of looking one way while feeling quite differently requires both. Sveilich interviewed and photographed over 50 people of all ages and walks of life who live with a wide variety of concealed disorders. She also consulted with numerous medical and mental health professionals to explore the juxtaposition of looking one way while feeling quite another. 

 

 

 

Families and Children

Living Well with IBD: A Self-Management Handbook for Patients and Families
Editors, Wallace Crandall, MD; Kevin A. Hommel, PhD; Maria E. Perez, DO, 2011 


This free handbook is the result of an extensive collaborative effort by healthcare professionals who understand IBD from a pediatric perspective. It is a resource for parents and children with IBD of all ages. Contributing authors include pediatricians, a nurse practitioner, social worker, pediatric gastroenterologist, psychologist and dieticians. This tool is intended to help families facing the challenges that may present in the course of pediatric Crohn's disease or ulcerative colitis. The book will provide information to help families and children gain greater control of their health while living with IBD. 

 

 

Your Child with Inflammatory Bowel Disease: A Family Guide for Caregiving 
Maria Oliva-Hemker, M.D., David Ziring, M.D. and Athos Bousvaros, M.D. 2010 


An expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn’s disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older.

 

 

Hold the Cheese Please! A Story for Children About Lactose Intolerance
Frank J. Sileo, PhD, 2009

 
Danny is tired of feeling different because he is lactose intolerant. After being teased by a classmate at lunch, Danny reacts by eating ice cream and drinking milk during a class party even though he knows he will have tummy troubles. With the help of the school nurse, Danny is able to teach others about lactose intolerance. "Hold the Cheese Please!" explains lactose intolerance to children between the ages of six through twelve years. The book contains an introduction to parents, a glossary, a list of non-dairy calcium rich foods and resources for more information. As Danny says, "…when you learn to accept things in your life they seem less scary…" This book offers a great message for children dealing with bullying and being different due to lactose intolerance.

 

Toilet Paper Flowers: A Story for Children About Crohn's Disease
Frank J. Sileo, Ph.D., 2006 


Story about a child who tells a new friend that she has Crohn's disease. Lesson is to have a "fighting attitude:" there will be good and bad days; to be hopeful despite adversity; to take an active role in one's own health care; etc. Written to help children struggling with Crohn's find validation for their feelings and learn more about the disease; also can be used with siblings and friends

 

 

 

Break It Down: The Digestive System (Body Talk/ Freestyle Express)
Steve Parker, 2006

 
This book provides and illustrated and easy-to-read navigation through the digestive system. It gives an overview of nutrition, anatomy and roles of the different organs throughout the digestive tract. This includes a glossary of terms for reference. Although this does not include disease information on IBD, it offers valuable information on related digestive knowledge.

 

 

 

General Information

Crohn's & Colitis for Dummies
Tauseef Ali, MD, 2013 


"Full of expert advice, Crohn's & Colitis For Dummies is the complete resource for those looking to understand these inflammatory bowel disease and the various treatments available. This reassuring, informative guide helps you to actively recognize symptons of Crohn's and Colitis and explains in plain English the procedures doctors use to diagnose the disease. It outlines how the body is affected and the consequences you'll face if the disease goes untreated. With authority and compassion, it covers how you can control your disease through changes in your diet, and explores the treatment options available, filling you in on the risk and benefits of each."


 

 

Crohn's Disease and Ulcerative Colitis, Everything You Need to Know, The Complete Practical Guide, 3rd Edition
Fred Saibil, M.D., 2011.


This book “
is a treasure trove for those who are new to the illnesses, and a wonderful reference even for those who have long experiences with them.” [Bruce E. Sands, M.D. M.S., Dr. Burrill B. Crohn Professor of Medicine and Chief of Gastroenterology, Mount Sinai School of Medicine, New York. Dr. Fred Saibil, a renowned expert on IBD, explains complex medical conditions in plain English, with a straight-forward, easy-to understand style. This fully updated and expanded bestseller provides the latest practical information on Crohn’s disease, ulcerative colitis, and related conditions. This new edition contains 7 added tables and drawings to guide you.

This 3rd edition contains the latest on topics such as: why people get IBD, including the “hygiene hypothesis”; the effects of diet, including foods and food components that can cause diarrhea and gas; the latest diagnostic methods, including enteroscopy, capsule endoscopy, CT, MR, and PET scans; a whole new chapter on self-management – how to help your medical team help you, with specific scenarios, and suggestions; the expanding choice of drugs, plus probiotics and prebiotics; how to take care of your bones; and issues specific to children with IBD.

 

 

 

Questions & Answers About Crohn's Disease
Francis A. Farraye, MD, MSc., 2012

 
This book is packed with important information and is a helpful guide for anyone living with Crohn's disease. The format is well laid out, answering a wide range of questions from common to unique, and is filled with interesting visuals, diagrams and charts. 

 

 

 

 

 

Inside Tract: Your Good Gut Guide to Digestive Health
Gerard E. Mullin, MD; and Kathie Madonna Swift, MS, RD, LDN, 2011


For those seeking a well-presented broad view of the gut, Inside Tract may be just the book. Not specifically focused on IBD, this guide to digestive health covers complementary approaches to a number of digestive diseases. These include IBS, GERD, celiac disease, and gluten sensitivity. It includes a questionnaire and evaluation point system for self-help to digestive health. 

 

 

Questions & Answers About Ulcerative Colitis
Francis A. Farraye, MD, MSc., 2010

 


This free guide is for patients with short bowel syndrome (SBS). SBS is a disorder that affects people who had large portions of their small intestine surgically removed. The information in the guide can help patients and families understand their gastrointestinal track (GI) and how to maximize what is left of theirs. There are things that can be done with diet and medications that will help the GI track work more effectively. The guide provides helpful and valuable information. 

 

 

 

Patient's Guide to Managing a Short Bowel
Carol Rees Parrish, MS, RD, 2011


This free guide is for patients with short bowel syndrome (SBS). SBS is a disorder that affects people who had large portions of their small intestine surgically removed. The information in the guide can help patients and families understand their gastrointestinal track (GI) and how to maximize what is left of theirs. There are things that can be done with diet and medications that will help the GI track work more effectively. The guide provides helpful and valuable information. 

 

 

 

100 Questions and Answers About Crohn's Disease and Ulcerative Colitis: A Lahey Clinic Guide
Andrew S. Warner, M.D., and Amy E. Barto, M.D., 2010 


Provides answers to common questions asked by patients, family members, and friends, based on scientific information and the authors' experiences treating IBD. Also includes insights about living with IBD from the patient's perspective. Topics include: how IBD is diagnosed and treated; complications including dysplasia and cancer; when to have surgery and the different types of operations used to treat IBD, diet and nutrition; lifestyle; and reproductive issues and pregnancy.

 

 


IBD Self-Management: The AGA Guide to Crohn's Disease and Ulcerative Colitis
Sunanda V. Kane, M.D., MSPH 2010



Receiving CCFA's stamp of approval, IBD Self-Management is a great resource for patients and families. Through the personal stories of patients, you will learn how to prepare for emergencies, flares, treatment failures, surgeries, and all the "what ifs". Dr. Kane's patients have taught her that one size doesn't fit all when it comes to IBD treatment. She delivers straight talk that dispels myths on medication and nontraditional treatments, "healthy gut" diets and diets for flares, and cancer prevention. She'll help you understand what your doctor is telling you about testes and surgery so you can pinpoint your options. 

 

 


Personal Stories 

Living with the Bully of Crohn's Disease
James Patterson, 2014 

“Living with the Bully of Crohn’s Disease” is my 47 year history of living with this chronic lifelong ailment and includes some of the mistakes I made and the difficulties I overcame. I describe many tools and ideas I have used in order to promote healing and live a productive and fulfilling life, even in the presence of severe Crohn’s. I discovered some useful tools to manage the physical challenges of Crohn’s but my personal battles of anger, fear, or guilt were the most challenging. I recognized I needed to find better ways to manage my poor responses to this ailment and build healthier qualities such as joy, gratitude and forgiveness. My hope is that others will benefit from some of my experiences.”

This is a thoughtful, intelligently written self help book. The author/patient writes in a style that could appeal to any reader. He stresses step by step the value of developing a strong family, friend, health provider and spiritual network with the claim that support from all of these aspects has helped him to survive through the terrible ordeal of living with Crohn's Disease for many years. 

 

 

The IBD Fitness Solution: The First Strength-Training Program for Building Muscle, Getting Stronger and Living a Healthier Life with Ulcerative Colitis  
Joseph Morstad, 2012


The IBD Fitness Solution
will answer many questions including: How to gain muscle and improve strength? Is it safe to exercise again? and What should patients avoid? Inside you will find a 4 month full body training program. Each month will help guide and progress you towards finding your strength and rebuildiing muscle. 

 

 

 

 

 

MIsadventures of a Garden State Yogi
Brian Leaf, 2012


A story of the authors humble quest to heal his colitis, calm his ADD, and to find the key to happiness.  Leaf educates, inspires, and entertains as he shares his personal story, while at the same time explaining yoga’s true healing power and what it can offer anyone interested in living a healthier life.

 

 

 

 

 

The Man Who Couldn't Eat, A Memoir 
John Reiner, 2011


In 2009, following emergency surgery for his Crohn’s disease John Reiner underwent Total Parenteral Nutrition (TPN) for a three month period.  In his memoir he describes a bumpy and personal journey that will be inspiring to all patients and families, while it increases awareness of the seriousness of Crohn’s disease for many others.  The book also discusses the healthcare system through the eyes of a chronic patient along with the stress to marriage and family life brought on by chronic illness.

 

 

 

Coming Back to Life
Valencia Hardaway, 2011


Coming Back to Life is an inspirational memoir through Velencia Hardaway’s life living with ulcerative colitis.  It is also a story of faith.  After numerous operations and staring death in the face, Velencia was given another opportunity to live her life.  Once she came off life support, Velencia not only wanted to survive, but she wanted to live a productive life.  Ms. Hardaway was determined to live a fulfilling life with love and support of her family.

 

 

 

 

The Foul Bowel: 101 Ways to Survive and Thrive with Crohn's Disease 
John Bradley, 2010



This book combines a humorous, personal look at the author’s experience with Crohn’s Disease with useful advice on coping with this chronic illness and the health care system.  Bradley’s description of procedures and hospitalization will resonate with all who have had similar experiences.  His candid sharing of the details of living with CD offers many pointers not found in typical literature.

 

 

 

 

Game, Set, Life: My Match with Crohn's and Cancer
Wayne J. Street, JR 2010


High school is hard enough without worrying about your reputation, but teen embarrassment reaches new levels for Wayne J. Street Jr. What starts as severe stomach cramps quickly sidelines the tennis standout for fear of losing control of more than just his serve. Written with Wayne's wit and dry humor, what could easily be a sob story of agonizing treatments quickly evolves into a story toned with personality and perseverance. 

 

 

 

 

Get Fit to GO 
Laura O-Reilly, 2010


In 1988 Laura O'Reilly was diagnosed with ulcerative colitis. During her worst flares she experienced debilitating pain and excessive weight loss. She knows that by managing stress, diet and adapting good exercise habits, she has a better chance of preventing disease and illness. In her book she shares important strategies. Get Fit to Go is an easy to read, people friendly guide to better diet and exercise for anyone who is ready to take the bold first step toward improved health and fitness. 

 

 

 



Colitiscope: Living With Crohn's Disease and Ulcerative Colitis
Andrew Tubesling, 2009


More of an adventure story than an encyclopedia, this resource for Crohn's and colitis patients weaves humor with introspection and information with observation. Written by a sufferer of inflammatory bowel disease (IBD), the guide shares common tales and insights while also covering symptoms, medications, and procedures, from a uniquely entertaining viewpoint. Humor and frankness are used as a coping method, helping to illustrate and conquer common difficulties brought on by the chronic illness.

 

 

 

I Still Dream Big
Penny B. Wolf, MSW, 2009


In I Still Dream Big seventeen young people share their personal stories of being a teenager living with a chronic illness including, Crohn’s, Diabetes, Lupus and Multiple Sclerosis. No matter what the diagnosis, these young people share one thing in common: their lives have been changed dramatically by illness. The stories of the teens in this book are filled with optimism and hope despite the very real challenges they face. I Still Dream Big is a celebration of life and a reminder to all of us to hold onto our own dreams for the future—and to remember to DREAM BIG.

 

 

 

Together on Top of the World: The Remarkable Story of the First Couple to Climb the Fabled Seven Summits
Phil and Susan Ershler, 2007


The moving and inspirational account presents Phil and Susan Ershler, the first couple in history to scale the fabled Seven Summits. In mountains on every continent they learned to trust each other and to put their lives in each other's hands. Phil was a professional mountain guide who had never revealed his darkest secret: that he suffered from Crohn's disease, a debilitating lifelong illness. Susan was a corporate executive who, at the age of thirty-six, had neither hiked nor climbed. But drawn together by their life-affirming zest for challenge, Susan and Phil formed a true soul connection.

 

 

 

Gut Help: Guide to Breaking Free of IBD and IBS
Stephen Demirjian, 2006


Describes the author's personal experiences living with ulcerative colitis and struggling to find a combination of diet, medication, probiotic supplements, and exercise to control his disease; a memoir of everything he did and what happened to him physically and spiritually, intended to inspire others to care about and take an active role in their health. Details the Gut Help program he created, gives tips for following the Specific Carbohydrate Diet, gives examples for how to keep food and symptom journals, and describes coping strategies.

 

 

 

Living with IBD and IBS: A Personal Journey of Success
Elizabeth A. Roberts, 2006


Story of how the author learned to live with IBD and IBS. Discusses special diets; support groups; the role of yoga, meditation, and exercise; dealing with emotional factors and stress; helping your family and friends adjust; and living positively. Provides lots of tips and ideas for adjusting your lifestyle to deal with IBD, as well as information on additional resources.  

 

 

 

Disclaimer:

The selection of resources provided in our book store includes titles on a wide range of subjects. This list has been created for patients and families affected by Inflammatory Bowel Disease (IBD) and healthcare professionals who work with them. The list is not exhaustive and does not include every book on IBD.

This book list is provided for informational purpose only and is not a substitute for reviewing treatment options, symptoms and management of illness with your health care provider. We encourage you to review relevant informational material with your healthcare professional.

The views and opinions expressed in the books are those of authors and do not necessarily reflect the views and opinions of the Crohn's & Colitis Foundation America (CCFA).

 

 

 

 

 

 



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